Tag Archives: occupational therapy

Jason’s Motor Skills and Socializing

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Present word count of WIP:  53,057

I came across an old email sent to a PTO colleague toward the end of Jason’s First Grade year. Reading it again these many years later still transported me back to the mindset of that first year after his diagnosis:

“Two days ago when I was watching Jason on the playground I wasn’t stressed so much as depressed and kind of lost in thought. He seems so normal at times and then I catch him so obviously unlike most of the other kids…playing by himself, in his own world. After he went in to see the private psychologist yesterday, Allison asked me if I wasn’t disturbed or unhappy that he has Asperger’s syndrome…I said that, certainly, for the first few months it was depressing (without explaining why) but that I’d come to grips with it. In truth, I have moments (and probably always will) when it’s a depressing, discouraging, and unsettling realization. Anyway, the moments pass. Enough venting.

My stress lately hasn’t been so much PTO but, rather, getting my kids to all their various appointments with doctors, Jason’s psychologist, dentists, the orthodontist, etc. I probably seemed stressed the other day because I had to get Jason to his appointment with Ms. Bouton (Even though she was his Kindergarten teacher and he’s now in First Grade, she’s graciously offered to help him twice a week after school with his math, since he gets along so much better with her than with the Resource Specialist, Dr. Mahdavi…Ms. Bouton has a nephew with Autism and her brother-in-law’s niece has Asperger’s), and then hustle back to meet with Dr. Mahdavi and the District’s Adaptive PE Specialist concerning the results of her assessment with Jason. Bottom line: TOO MANY APPOINTMENTS AND MEETINGS! I’m just not used to it…but I’d better get used to it because, in a week or two, Jason will get started on Occupational Therapy twice a week for six weeks or so. Anyway, like I said before, enough venting already!”

No, it wasn’t easy, but it wasn’t nearly as difficult as many parents with kids on the autistic spectrum have it. I recall one mother at our school who had triplets, one of whom had pretty severe autism. She ended up having to institutionalize him after her divorce because by middle school he was simply too big for her to handle when he got violent.

I certainly felt blessed when it came to Jason’s temperament.

Now, on with the list of his differences in Motor Skills and Movement, followed by those in Social Interaction.

As with speech, Jason was delayed in both fine and gross motor skill development. He showed no interest in sports (I signed him up for T-ball and basketball and even gymnastics, since he was so small…but he didn’t seem to fit in or enjoy any of it) and hardly ever wants to go outside to play. That latter characteristic might mostly have been chalked up to his inordinate fear of dogs, but by his first IEP he seemed to be beginning to get over that. (Actually, he’s never really gotten over his fear of dogs even today.)

Motor Skills and Movement

  •  He’s only now getting comfortable using scissors to cut things up (this after two and a half years of pre-school, plus Kindergarten).
  • As a toddler, he had a real fear of stepping up or down off a curb (even when holding on to my hand). The occupational therapy helped here, and he will now go up and down an escalator (holding my hand).
  • He’s been described by my father as having a strange gait, walking like Hercule Poirot in the PBS Masterpiece Theatre series (whatever that looks like).
  • Halfway through Kindergarten he was finally able to ride the big trikes…but he shows no interest in his own little bike with training wheels. He is showing an interest, however, in his sister’s new scooter. (That didn’t last.)
  • He can’t pump himself on the swings and, when pushed, only wants to go so high.
  • He still needs help dressing himself (he can’t do the zipper, some buttons, or put on his own socks).
  • He avoids slides at all costs, unless they’re small slides he’s familiar with.
  • He doesn’t seem to have the strength to build with Legos himself…but we’re working on it.
  • He used to rock a lot while eating at the table until he had a bad fall. He also rocked whenever we held him in our lap. He still does when he’s bored or antsy (like at church).
  • He used to rub his thumb and index finger together softly while he read or listened to stories or sat at the table…he doesn’t anymore.
  • When he’s not feeling well or worried about something, he’ll sit or lie down and softly stroke his bare stomach (he was doing this today after school).

Jason with one of his older RCT friends

Socially, Jason at age 6 was very affectionate and loving with those he was close to (mainly his immediate family and Grandma–my mother) and could become so very quickly with others he met (like Amanda, a 14-year-old at RCT, the children’s theatre group)…generally, however, he didn’t have any real friends among his peers either at school or church.

Social Interaction

  •  Kids in his class at school are nice to him and some really go overboard to help him out in class (with cutting and gluing, etc.), but he doesn’t seem to really make a personal connection with them. I thought he was becoming friends with Drew, particularly because they started out taking swim lessons together last summer, but nothing’s really ever come of it. The only time he wanted to go to Drew’s house was because he wanted to see one of his toys. As I’ve thought about it, most of his requests to socialize seem to be geared toward getting an opportunity to play with a particular toy or item.
  • Even when he’s playing with his cousins, he’s playing more with the toys than with the cousins.
  • He seems to socialize better with adults or older kids or younger kids.
  • Generally, his social behavior seems immature for his age.
  • He’s content to play by himself with his toys, his Gameboy, or on the computer. He’ll go upstairs and read or play for hours without complaining about being bored. Unlike his sister, he never complains of being bored.
  • If he takes a dislike to someone, adult or child, he shows it readily with off-putting, rude behavior (often to the point of embarrassing us).
  • In fact, he seems to have developed very little tact despite our best efforts to educate him to be polite. He just says what he thinks.
  • He also doesn’t seem to be able to clue in to certain social graces. Hardly a day goes by when I pick him up after school that someone will say “Bye” to him on our way out to the parking lot and he doesn’t respond. Invariably, I have to tell him to say “Bye” back. There are a few people he goes out of his way to greet or say “Bye” to (like his teacher, Ms. Rios), but he’s oblivious to most.
  • If the teasing by others is subtle, he doesn’t get it and ends up laughing at himself just because the other person’s laughing. I guess that’s what he’s supposed to do, too.

Jason playing with his cousin, Cole

Tomorrow, I’ll post about his Obsessions/Preoccupations and his unusual Routines. Some of you have expressed a desire to know how he’s changed (or not) over the years. I promise to conclude by covering that development by the end of the month.

Originally posted 2012-04-24 18:53:18.

From Communicatively Handicapped to…Genius?

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Present word count of WIP:  51,026

I felt like the most heartless mother in the world that next Monday when I took him to the Sunshine School and then left, his crying following me all the way out to the parking lot. As you might imagine, guilt plagued me all day long, and when Allison and I went to pick him up again in the afternoon and I felt the way he clung to me, I was almost of a mind to forget the whole thing.

Fortunately for him, I didn’t. I tamped down the guilt the next morning and swallowed hard as I helped him on to the small school bus and then waited a second, long day…and a third…and so on. Eventually, he began boarding the bus himself.

Jason boarding the bus for Sunshine

Though it took a while for Jason to feel at home at Sunshine, by his second year there I couldn’t deny that he was thriving in ways he never would have at home alone with me. The staff there was tremendous and they fell in love with the little guy. So did many of his fellow students, whether they were blind, crippled, had Down Syndrome, or were otherwise disabled. In fact, that was one of the best things about the school. It broke down barriers between the so-called “different.”

Jason's the green M&M for Sunshine Halloween party

His teachers were able to help me finally potty train him by age 4 and speech therapy helped a lot. In fact, he was beginning to speak better than most children his age. Our health coverage paid for some occupational therapy sessions, but he didn’t make as many strides there in terms of gross motor skill development. In fact, he fought it. The one great thing we got out of it were the two big therapy balls, which he and Allison then began to play with around the house.

Jason sitting on his therapy ball while watching a favorite video

Every day after he’d get home from school and eat, he’d bounce all over on the smaller of the two balls as his way of decompressing or “stimming.” (Today, he draws cartoons, instead.) As for his oral and tactile defensiveness, the most progress he made was the day they said they got him to drink half of a little carton of chocolate milk…and the one time they got him to try finger painting (he hated it).

In the meantime, I was trying to teach Allison to read. To help her with letters and sounds, I bought a Muppets software program and tried to get her interested in playing the games it included on our computer. She didn’t feel comfortable around the computer, however. But Jason did. As soon as she’d climb down off the chair, Jason would take her place. He was fascinated by all these visual cues and he loved playing those Muppets games. Gradually, I became aware that he had taught himself to read. In fact, he was doing so well academically at Sunshine that they finally had to “exit” him from the school early because he no longer qualified as “communicatively handicapped.”

I put him in a regular pre-school for the remaining 4-5 months, which of course only met three days a week from 9 am to noon. He did fine there, but he really missed Sunshine and he didn’t make any new friends.

By the fall of 1999, he was reading at an advanced level. This was confirmed by Ms. Bouton, his assigned Kindergarten teacher, when she met him before the start of the school year. She met with all her kids before the first day of school to test their reading and math levels, and when she brought Jason out after testing him, she asked, “Who taught him to read? Did you?” I explained about the Muppets program and said he’d really taught himself, though I had always made it a point to read to both of my children every night. She informed me Jason was already reading at a first or second grade level.

I remember taking him back home that day and wondering, Do I have a little genius on my hands?

For that reason alone, I made another fortuitous decision: to get involved immediately in our school’s PTO. After all, if I had a gifted child, I wanted to be sure he was going to get all the services he needed.

He made his way through his Kindergarten year relatively unscathed. After all, all the kids were new, so they helped each other out, and they got to play in their own protected playground. They enjoyed Jason despite his little quirks because he was always well behaved. He even became popular in his own way. The other kids were entertained when he’d perfectly re-enact scenes and songs from videos he’d seen.

Ready to read a story for St. Patrick's Day in Kindergarten

But it wasn’t just the children who were charmed. The teachers and staff at his elementary school took to him as quickly as had those at Sunshine. He’d think nothing of correcting Ms. Bouton in a matter-of-fact way if she happened to misread something aloud to the class, and rather than be offended, she’d be amused.

By the end of his Kindergarten year, Jason had made several friends and I was in line to be PTO Vice President in the fall. In addition, I was becoming good friends with the school principal. As I saw it, I would be getting my little boy wonder ready for possible entry into the school’s GATE program for the gifted.

Actually, we were heading toward something else entirely. A new diagnosis.

On Monday, I’ll post about Jason’s pivotal First Grade year.

 

Originally posted 2012-04-13 12:21:21.